Pip's Blog

Pip's Blog

Welcome to Pip's Blog, where our Centre Manager Pippa brings you up-to-date news from the Berkshire MS Therapy Centre and the MS community.

If you have any feedback or you would like to contact Pip email pippa@bmstc.org or call 0118 901 6000.

For older posts please visit http://pips-bmstc.blogspot.co.uk.

 

Drugs in development

5 September 2017

Source MS Trust:

The development of new drugs is a long and difficult process. Fewer than one or two compounds in 10,000 tested actually make it through to being licensed treatments with many being rejected on safety, efficacy or quality grounds.

Cladribine: NICE looking at new treatment for MS

5 September 2017

Source MS Society:

The European Medicines Agency (EMA) has licensed cladribine (also known as Mavenclad) to treat people with highly active relapsing MS.

The National Institute for Health and Care Excellence (NICE) will now decide whether to make it available on the NHS in England and Wales. The Scottish Medicines Consortium (SMC) will decide for Scotland.

How does it work? Cladribine is currently used as an anti-cancer drug. In MS, the body’s own immune cells...

MS Active Together

5 September 2017

Source MS Society:

If you can't attend the Berkshire MS Therapy Centre for one of our exercise classes then the MS Society MS Active Together videos could be for you.

MS Active together is about helping you be more physically active. Everyone's MS is different, but exercise can help everyone – no matter how MS affects you.

Congratulations for completing the Mongol Rally 2017!

31 August 2017

Our Chairman Pete Bowsher's daughter Amy and new Son-in-Law Nathan have completed the 2017 Mongol Rally driving nearly 10,000 miles to Mongolia raising funds for BMSTC.

People with MS lose more than £6m of benefits a year after PIP is introduced, show figures

31 August 2017

A third of MS sufferers who previously received the highest rate of Disability Living Allowance have had their payments downgraded since 2013

Accessible beaches and beach wheelchairs around the UK

30 August 2017

Source Disability Horizons:

The Bimblers describe themselves as the UK’s most unlikely travel bloggers. Rob, together with his partner Bridget, travel in a wheelchair, reviewing access as they go. Driven by the mantra ‘access for all’ Rob has joined us to share his thoughts, observations and ideas to make travel easier for people of all abilities. This month he rounds up the best accessible beaches in the UK and where to hire beach wheelchairs from.

MS Brain Health

30 August 2017

Source Shift-MS:

This short guide is a resource to help people with multiple sclerosis (MS) understand how they can keep their brains as healthy as possible and request the highest possible standard of care from healthcare professionals.

Cladribine (Mavenclad) gets European licence for highly active relapsing MS

30 August 2017

Source MS Trust:

The European Commission (EC) has granted marketing authorization for cladribine (Mavenclad)for the treatment of adults with highly active relapsing multiple sclerosis. This follows a recommendation from the European Medicines Agency in June that a licence should be granted.

DWP spends £39m defending decisions to strip benefits from sick and disabled people

30 August 2017

Source Independent:

Ministers have spent almost £40m in an “appalling” attempt to stop sick and disabled people receiving the financial help they are entitled to, The Independent can reveal.

‘I approached my 50th birthday unable to balance or speak'

30 August 2017

Source Caroline Wyatt 25 AUGUST 2017 • 12:00PM The Telegraph:

I lay face down on a pedestrian crossing, knees bleeding where they’d hit the road. I couldn’t get back on my feet, even as the lights changed. It was May 2016 and I’d been on my way to meet friends when I fell without warning. The next day I woke too wobbly to walk, with double vision that took weeks to resolve.

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