The second reading of the Universal Credit and Personal Independence Payment (PIP) Bill passed on Tuesday 1 July with last-minute concessions around PIP eligibility. The Bill will now be scrutinised and any potential amendments considered. It then returns to the House of Commons for its third reading on 9 July for any further amendments. […]
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Last year, you may have completed My Neuro Survey 2024, on behalf of national charity Neurological Alliance. The survey was aimed at people with all kinds of neurological conditions such as MS. The results of the largest patient experience survey of its kind, show that in England: The situation is especially stark when it comes
Join the Neurological Alliance’s call to action! Read More »
One of our members has recently shared a petition which she thought others might be interested in signing. The petition concerns the fact that some MS patients were recently switched from a drug called Tysabri (natalizumab) to a newer, cheaper biosimilar version called Tyruko. Some people feel that this medication is not working as well
We had a great week last week as we marked MS Awareness Week with various activities. We were out and about with the MS nurses at the Royal Berkshire Hospital. We also had stalls at the Oracle and John Lewis in Reading, where we handed out information and also invited people to find out about
Looking back on MS Awareness Week Read More »
You may be aware that the current Government is looking at making cuts to disability benefits and that the proposals include changes to Personal Independence Payment (PIP). National charity MS Society is concerned about the potential negative impact on many people with MS. They would like to hear your views in a survey about the
Disability benefit cuts and MS survey Read More »
Next week is MS Awareness Week, where MS charities come together to raise awareness. We will be out and about spreading the word about the Centre and the support we offer with information stalls at the following places; We will also have a collection taking place at Reading Station on Thursday 1 May and our
MS Awareness Week next week Read More »
Source: MS Society The UK government has announced proposed changes to disability benefits. They shared these in a Green Paper which is an official document published by government with ideas of things they want to change. This means nothing is changing today. There will be a 12-week consultation on some of the plans. However, some
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National charity The MS Society in collaboration with The Work Foundation have launched a survey into the experiences of people with MS with employment. The survey covers employment related questions and focuses on the challenges people with MS have faced at work, as well as the support that makes a difference to them in finding and maintaining
Fill out the MS Society survey on MS and work Read More »
National MS Charity the MS Society have given the following response to last week’s Autumn Budget; Funding for healthcare £22.6 billion of extra funding was announced for the NHS in England, as well as a commitment to decrease waiting times for patients accessing treatment. This is welcome news, as we know people with MS are facing
What does the Autumn Budget mean for people with MS? Read More »
National charity The Neurological Alliance is asking people with neurological conditions such as MS to fill out ‘My Neuro Survey’. Adults and children with a confirmed or suspected neurological condition and people who provide support or care for them can take part. The survey data will be used to lobby government and healthcare providers, including
Fill out ‘My Neuro Survey’ Read More »
