Campaigning

Last week was MS Awareness Week and we had a great time spreading the word about MS and about the support the Centre can offer. We were interviewed on That’s TV Thames Valley and featured in the Wokingham Paper. We held a hilarious sold out Bingo event which raised around £600. Jackie and Claire from

One of our members has shared this information which she thought might be of interest to some of our members. A group of people with MS are gathering real-world experiences from people who have been switched from Tysabri IV (originator natalizumab) to Tyruko (biosimilar natalizumab) within the NHS. This survey aims to better understand how this transition

This poem is called Four Hundred, the reason being that an estimated 1 in 400 people in the UK have MS according to the MS Society. Four Hundred This story is rare,This story is unique,Opening up here I’m stripping myself bare,Shocks down the spine,Pain in my face,How can I pretend I’m fine,Distorted vision,When I get

I am annoyed with the perception of MS in the media. Particularly on TV programmes, a diagnosis of MS is viewed very negatively. I noticed this when I was diagnosed in 2008, and it’s still the same today. Also since I’ve been suffering with a speech impairment, some people don’t talk to me in a

Sometimes in life people surprise you. It can often leave an indelible (happy) mark on you at a time that you perhaps needed it the most – especially with all the added complications that come with MS. This was the case with me and it is the absolute reverse of incorrect assumptions or judgements being

Living with MS has been quite the journey, filled with both challenges and smiles. When I was first diagnosed, I felt incredibly lonely. I was suddenly navigating a new world all on my own, with nobody to really talk to about what I was experiencing. I didn’t want to let my husband know how I

I know none of what I am about to say makes sense to you. But right now, I feel I have no legs because both of them are numb. But right now, the whole room is spinning. But right now, my chest is squeezing so hard and I can barely breathe. With a chronic illness

I think the biggest issue I have had is that people see you do something once or twice and assume you can repeat it ad infinitum. MS won’t let you do that – so one day you might be doing it and another you have to say no. Unsurprisingly, everyone assumes you’re faking it!

MS Awareness Week runs from 20 to 26 April and local and national MS charities come together to raise awareness of the condition and the support available. The Centre will have an information stall at the Royal Berkshire Hospital on Tuesday 21 April and our sold out Bingo Night takes place at the Centre on