Supporting you to live life with Multiple Sclerosis

I am annoyed with the perception of MS in the media. Particularly on TV programmes, a diagnosis of MS is viewed very negatively. I noticed this when I was diagnosed in 2008, and it’s still the same today. Also since I’ve been suffering with a speech impairment, some people don’t talk to me in a…

Sometimes in life people surprise you. It can often leave an indelible (happy) mark on you at a time that you perhaps needed it the most – especially with all the added complications that come with MS. This was the case with me and it is the absolute reverse of incorrect assumptions or judgements being…

Living with MS has been quite the journey, filled with both challenges and smiles. When I was first diagnosed, I felt incredibly lonely. I was suddenly navigating a new world all on my own, with nobody to really talk to about what I was experiencing. I didn’t want to let my husband know how I…

I know none of what I am about to say makes sense to you. But right now, I feel I have no legs because both of them are numb. But right now, the whole room is spinning. But right now, my chest is squeezing so hard and I can barely breathe. With a chronic illness…

This poem is called Four Hundred, the reason being that an estimated 1 in 400 people in the UK have MS according to the MS Society. Four Hundred This story is rare,This story is unique,Opening up here I’m stripping myself bare,Shocks down the spine,Pain in my face,How can I pretend I’m fine,Distorted vision,When I get…

I think the biggest issue I have had is that people see you do something once or twice and assume you can repeat it ad infinitum. MS won’t let you do that – so one day you might be doing it and another you have to say no. Unsurprisingly, everyone assumes you’re faking it!