Last year, you may have completed My Neuro Survey 2024, on behalf of national charity Neurological Alliance. The survey was aimed at people with all kinds of neurological conditions such as MS.
The results of the largest patient experience survey of its kind, show that in England:
- Just 1 in 3 respondents felt the health care they receive meets their needs.
- Almost half (48%) do not feel supported by the health system.
- Over a quarter of people couldn’t access a neurologist or specialist nurse in the past year.
- More than 4 in 10 said they don’t know who to contact between appointments.
- Three quarters said their condition impacts their ability to work or study; 6 in 10 are struggling financially.
The situation is especially stark when it comes to mental health support:
- 69% of people who needed neuropsychiatry services couldn’t access them
- 62% couldn’t access neuropsychology
- *48% were unable to access counselling
Despite the challenges, the survey also highlights the positive impact of good care when it is accessible. 72% of people said they felt comfortable speaking with healthcare professionals, and 57% reported that information was clearly explained.
The Neurological Alliance is calling on people to sign their open letter to Secretary of State for Health and Social Care, Wes Streeting, urging the Government to take urgent action for the more than 1 in 6 people living with a neurological condition, such as MS.
Counselling at the Centre
*Please don’t forget that we provide counselling online, in person and over the phone for people with MS and their families. Visit www.bmstc.org/counselling or email ms@bmstc.org to find out more.
