I know none of what I am about to say makes sense to you.
But right now, I feel I have no legs because both of them are numb.
But right now, the whole room is spinning.
But right now, my chest is squeezing so hard and I can barely breathe.
With a chronic illness patient, you really have to believe what you can’t see.
I can’t easily plan for the future, simply because I don’t know how my body will react tomorrow.
I didn’t cause my illness, in fact I did everything right and still ended up with a multiple sclerosis diagnosis.
I don’t cancel because I don’t care. I live in an unpredictable body that didn’t register this day as fun and social.
Life with MS needs a lot of scheduling, we need to guess and strategise for everything possible simply because we are not sure what’s happening in the next hour!
I have tried every single herb, supplement, diet, exercise, lifestyle choice. Guess what? I still have MS. Please don’t send every cure you find on the internet. It dismisses our whole experience.
Listen to us. That’s all we need.
Living with MS feels like playing Russian roulette every day. I don’t know what’s going to happen.
They say don’t judge a book by its cover, so why judge what you can’t see?