Without doubt, the most important conversation I’d ever have with anyone about my MS diagnosis was the conversation with our children, who were aged 8 and 4 at the time. I knew it had to be pitched carefully – not too much information/overload but enough to take away the uncertainty of what had been going on for several years, and reassure about the future. There would never be a second chance – no erase and restart. It had to be just right…
I researched quite a few books/resources, and came across one that was perfect called Some Days. No scientific overload, just a gentle walk through what life can/might/is like with a parent with MS. The contrast between good and bad days, but highlighting the opportunities, however small, for joy, love and delight, even in the toughest days.
This book was perfect for our children, our family. A safety net to rest into after navigating the initial part of the conversation about my diagnosis.
I would absolutely recommend using a book, to parents with young children wondering how to share their diagnosis news. Some Days was a great fit for our family, particularly as books have supported discussions about emotional literacy and general life events regularly in the past.
Thank you to our member for sharing this story as part of MS Awareness Week, which this year has the theme of #MS Conversations.
