MS Society – Approved but denied campaign
MS Society – “Approved but denied” campaign to make sure people with MS in England aren’t facing an unacceptable postcode lottery.
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Campaigning
ICYMI: Share your views about hydrotherapy in Berkshire West
In case you missed it in August, Berkshire West CCG is looking for your views on hydrotherapy at the Royal Berkshire Hospital in Reading
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The MS Society went to 10 Downing Street with their ambassador Janis Winehouse
Source MS Society: The MS Society went to 10 Downing Street yesterday with their ambassador Janis Winehouse and campaigner Ashley Arundale to deliver a message to the PM: Unfair PIP assessments must change. “More than 21,000 of us have signed an open letter demanding the UK Government makes changes to Personal Independence Payment (PIP). The open
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Launching an MS manifesto for the UK general election
Source MS Society: After months of speculation, the UK government has called a general election for Thursday 12 December. But what do people with MS want from our next government?
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Scrap the PIP 20-metre rule
Source MS Society: Scrap the PIP 20-metre rule.
Scrap the PIP 20-metre rule Read More »
Letter calls for ocrelizumab to be made available for people with PPMS
Source MS Trust: A letter signed by the MS Society, MS Trust, Shift MS and leading neurologists calls on NICE, NHS England and drug manufacturer Roche to make ocrelizumab available for people with primary progressive MS. Back in September, NICE announced that it would not be recommending ocrelizumab as an NHS treatment for early primary progressive MS.
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Justin Levene’s Luton airport protest is a watershed for disabled people
Source The Guardian: If all disabled people posted videos of being stuck on planes and trains, airlines and rail companies would have to change. Watching Justin Levene drag himself across the floor at Luton airport – his wheelchair had been lost in transit – might be a watershed for disabled people and our quest for better treatment in
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The Government has changed the law to make cannabis for medicinal use legal under prescription.
Source MS Society: The Government has today changed the law to make cannabis for medicinal use legal under prescription.
Former watchdog chief labels disabled benefits process a ‘hostile environment’
Source The Guardian: Andrew McDonald, who chaired Independent Parliamentary Standards Authority, says the system is ‘Kafka-esque’
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