REFUEL-MS is an exciting 5.5-year research programme at King’s College London. Funded by the MS Society and National Institute for Health and Care Research (NIHR). REFUEL-MS focuses on tackling fatigue, a debilitating and often invisible symptom that affects over 90% of people living with MS. The team has developed an app-based digital treatment that combines […]
An update on the REFUEL-MS research programme Read More »
This information session with Dr Gretchen Hawley will explore the powerful concepts of neuroplasticity and remyelination – two key factors in managing and slowing the progression of MS. This session will provide practical strategies and the latest research to help you improve movement, enhance strength, and stay informed. Neuroplasticity is the brain’s ability to rewire
Building new pathways, MS-UK webinar – Monday 27 January Read More »
Initial results from a clinical trial show that a drug called tolebrutinib can significantly slow down disability progression in people with secondary progressive MS who no longer experience relapses. The study recruited 1,131 participants with non-relapsing (non-active) secondary progressive MS. Participants were randomised with some taking tolebrutinib and others taking a placebo (a dummy drug) for up to
Potential new drug for Secondary Progressive MS Read More »
REFUEL-MS is an exciting research project developing an app-based treatment for MS-related fatigue using cognitive behavioural therapy (CBT), exercise and balance techniques. They have recently previewed the first version of the app. The content has been developed using the latest literature in close collaboration with experts from across the country, as well as those living with
Help test the REFUEL-MS app Read More »
National charity the MS Society is launching a Hospital Admissions Survey to explore the experiences of people with MS when attending the hospital. The survey asks about planned or unplanned (emergency) attendance and the reasons for it in order to gain an understanding of how and why MS patients are admitted to the hospital. The
MS Society Hospital Attendance Survey Read More »
ECTRIMS Patient Community Day is a day for people living with MS and related conditions to learn from top neurological experts about progress and updates being made in the treatment of their conditions. A roundtable panel of MS experts will discuss the latest progress being made in research, treatment and care – with a focus on trending
Sign up for an online research day on 20 Sep Read More »
People living with MS in England, Wales and Northern Ireland who are currently receiving the drug ocrelizumab via an infusion can now be offered an injection that takes just ten minutes. Ocrelizumab is a disease modifying therapy (DMT) for active relapsing MS or early primary progressive MS. It can be taken as an intravenous infusion
Medication news – Ocrelizumab injections Read More »
Fatigue – an overwhelming tiredness – is one of the most common invisible symptoms of MS. For this webinar, you will be joined by the REFUEL-MS team. This is a research study that will draw together the current most effective cognitive-behavioural and exercise fatigue treatments into a tailored digital treatment that can be implemented routinely
Refuel-MS: Fatigue webinar, 19 June Read More »
Some interesting research is taking place into the benefits of table tennis for people with MS. A trial to scientifically validate table tennis treatment kicks off in the US and Italy this week, run by Dr Antonio Barbera, who has held regular table tennis sessions near Denver for three years and seen encouraging results. Dr
The benefits of table tennis Read More »
One of our members has recommended a 30 minute podcast which she thinks could be of interest. It’s an episode of Just One Thing with Michael Mosley and it’s an Inflammation Special with Janet Lord, who is Professor of Immune Cell Biology at the Institute for Inflammation and Ageing at Birmingham University. They talk about
An interesting podcast Read More »
